Hi Kat, It was good to meet you yesterday. Did you find it useful/helpful? what a shame you had to leave before Jacob's 'bit' it was a very strange sensation trying to 'stretch' our own Larynx. It's a shame some of the others could not make it this time as I think you may have found things in common with them. Some have also experienced very long periods of undiagnosed voice loss, and regained their voice afterwards and I think you might have found it helpful to met them.
I wouldn't say it hurt, there was one point where we had to place our fingers on certain points and try to swallow, and it you couldn't then it meant you had got it right... that was weird!
The area under my chin feels a bit sore today as we were 'relaxing' it by pressing our thumbs up into into it a lot and I may have just got a bit over enthusiastic. Did he get a chance to feel you neck before you left? I think Terry said he would try to get him back in September. I think the next meeting is planned for the end of July, not too sure if I can make that one yet as it is close to our holiday, but hopefully I can persuade my husband to grant me a day pass.
We had friends over for a meal last night so after more talking and a late night, today was a much appreciated voice rest day.
Yes I am fine, but voice not as good as on Saturday. I am religiously doing Sara's exercises but the effect only seems to last for a short while. I keep trying to remember that we are training tiny muscles, so it will take time !!
Hope you are improving.Maggie
HI Kat, I tried to send you a mail message but it won't let me unless we're connected. ON the DLA, I think it's definitely worth another go claiming and I'm more than happy to help (my background is benefits advice work) - I've done a quick google search but there doesn't seem to be any case law about voice and DLA so you could be a trailblazer! ideally it would be better if we meet to go through the form. Could you contact DWP and request a form? they'll then date stamp it so when/if you get the benefit it'll be backdated. Are you in London at all in the next few weeks? I work at Kings Cross, usually in the office 3 days/week so could meet up, otherwise we could do it online via the sites chat function. In the meantime I'll start doing some proper research xxx
ps. feel free to share what they were going to do and/or why it is was declined if you want to. You can contact PALS (Patient Advice and Liaison Service) if you want to complain. The Health Care Trust should provide an explanation for declining funding. Maybe we can do something.