community for people with voice problems started by The Lary Project
Hi everyone !
i am 30 years old and was diagnosed with spasmodic dysphonia 2.5 years ago. I only recently discovered i was diagnosed with this awful condition a month ago as i went to the doctors for a self referral for speech therapy. I was relieved as for 2.5 years i felt like i was going in sane or crazy or people thought it was in my head or even putting it on.
I have also done research on spasmodic dysphonia and looked into botox injections, has anyone had these on this forum? could you advise if anyone has ? I have also researched surgery and the power of holistic therapies and cognitive speech therapies which wont cure spasmodic dysphonia but re inhibit good behaviors and strategies to help us speak to a certain degree. I start my first session on 9th of june with speech therapist and im going to enquire about botox. i have researched medical centers in America and the rehabilitation center in America , California were a lady called Connie pike who owns it - check her out on U TUBE people if you get chance- thats just dreams for me as its so expensive to fly to the other side of the world. I have researched hospitals in UK who do surgery for spasmodic dysphonia also. I will post some good websites i came across if anyone would like to check out.
I have discovered how difficult it is socially and using public transport and our job if your in a role were you need to speak, also using the telephone - i have never had a conversation on the telephone for over 2.5 years. also socializing with friends and family when out in social environments like a cafe or a restaurant ordering food etc. I have also got to tell you all that i have recently downloaded on me phone applications from the google store and also available on Itunes store - they are apps to help and assist to speak. I had an amazing idea to use the app with a telephone( so i phoned my nan and held the tablet to my mobile as i used the app to speak to my nan). this was a new beginning for me and a break through for me as i have never had a conversation on the phone for over 2.5 years. so it felt amazing ok it was not my actual voice and it was voice in the app but it was amazing.. I am an independent person like many of you are and also utility companies etc having to get some one to pretend to be me to sort my own personal business out is frustrating. this breakthrough with amazing apps and new technology apps is fantastic. I just had to share my story with all of you and my research, journey. hope everyone is keeping strong and keeping positive !
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